Monday, January 05, 2009

I'm tired of being tired

I posted that this morning on the Children With Diabetes message board and it rings true.

Until about mid-November, we had pretty good numbers for Emma. A few random lows and highs but we treated them and moved on. And then November struck. And for no reason, her numbers have been going crazy.

She's been running high during the day. To the point that we are questioning her insulin, her pump sites, her tubing, her rates, everything. Corrections with insulin don't always work but sometimes they work too well.

But then there are the lows. We don't like lows. A single low is more dangerous than an entire day of running high. And for the past few days, Emma's been getting them overnight. And its not a single low that we give her juice and she's back to normal. Its a low, followed by juice and more low. Followed by more juice and another low. For the past two nights, it been from midnight to about 4am and then she goes high and wakes up in the 200s.

I finally got the 200 tamed this morning but we are getting tired of getting up all night. We are both going to bed later because we are testing a lot around 10pm to midnight. And then we are having to set alarms - every hour - to catch the lows. I gave Emma a huge drink of juice overnight (2-3x what she needed) with the expectation that she would finally be in range and set my alarm for 90 minutes - no luck.

So tonight I will change all of her overnight rates, expect her to go high in response and then we'll fight this rubber-band swinging of highs and lows again!

1 comment:

CloverGirl said...

I'm sorry to hear that her numbers aren't as stable anymore. She is in my prayers, as are you and your family, as you deal with everything.

I don't know what it's like, but I watch our friends struggle with their son. I'm sorry that ANY parent has to watch their child suffer with diabetes.

Keep up your amazing work. It's obvious that you are doing a wonderful job managing things!!!