So we saw the doctor who will be our permanent endocrinologist yesterday. It was a crazy, hectic appointment because we had to go to Children's Hospital in DC; AND, it was the Doctor's day "on call" which is the only way she was able to actually see us.
She was frustruated with the regimen that the doctor in the hospital had put Emma on; as we were since her levels hadn't stabilized over the week and a half we'd been out of the hospital.
She started a new regimen yesterday. We like it for a variety of reasons:
- We increased her "long lasting" dose (her Basel). This is supposed to be the insulin that manages her throughout the day.
- We changed to a fast-acting "after meal" insulin for adjustments(Bolas). This is great because its based on her level before eating AND how much she eats. If she wants more carbs at a certain meal, we can increase her dose to adjust. If we can't seem to force the food in her mouth (which is often the case), we just decrease her dose. This is GREAT for a child who isn't in a position to understand the need for a certain amount of food.
In the past 24 hours, she hasn't gone above 250 (whereas she had been averaging higher than that most days). She has been staying mostly between 80 and 150 - and our target is 180!! So, for us, we are thrilled with the way her body is reacting. Of course, this could also mean her pancreas has kicked back in for a last hurrah, but either way, she isn't swinging and that makes us happy.