I assure you, after we get through this initial phase with Emma, it won't all be about her Diabetes. But for now...
Emma had a pretty good day yesterday. He numbers were getting more normal and the night before when I felt certain she was going to drop really low (because of her evening numbers), she stayed right on track. The one nurse I talked to said that her pancrease could even be beginning the "honeymoon phase" (after a person's sugars get back under control, their pancreas will often begin secreting insulin again. It's not much and it doesn't last forever - its sort of a "swan song" for your pancreas.
Well, Emma's body chemistry said "ha".
She was high over night (over 300). High enough for me to page the doctor, which I'm sure she loves at 3:15am! The Doctor had us give her an extra little dose of insulin overnight. But, her breakfast reading, morning snack, AND lunch readings were ALL over 300. It just doesn't make sense with the amount of insulin she had. It even baffled the nurse on the phone at lunch when she was deciding what to do. Both the doctor and the nurse made a comment "maybe she's coming down with something" (at which point I just wanted to pull out the gun and shoot myself). Getting a bug evidentally messes up your sugars too. Well, the nurse said to do Emma's normal dose and then check it about 3 hours later, when it should have been in effect (and the morning dose should still be working, since they overlap).
She was 150.
It just makes no sense, after being close to 400 for 12 hours, for a drop to 150 just 3 hours later!!
Baffling disease.
But hey, we got in with the new Endocrinologist on Monday. We have to drive all the way to DC for the initial visit BUT she got us a 10:30 appt, instead of the originally proposed 9am (which would have meant a 7am departure!)
1 comment:
Words fail me! you are handling this so calmly and it sounds like you are getting some good medical advice. Back in the day, I used to provide diabetes education, though never to patients as young as Emma. I'm nodding as I read your posts, you're being told all the right stuff. Now if you can just get Emma's pancreas to follow the plan, you can move on to the next stage.
Again, remember, one step/day/blood sugar at a time, and before long you'll look back and realize just how far you've traveled on this route and it all has become a new normal for you and your family.
Post a Comment